S.R.C.- Living With An Untold Diagnosis

A very moving post by Lucy. She talks about her diagnosis and how she dealt with it, along with how she wishes she had dealt with it. Her views are very valid, who do you tell when you receive such major news but at the same time you don’t want anyone to treat you any differently? Please take a read and help to understand and raise awareness for Rare diseases.


Up until last year I had kept very quiet about my Marfan syndrome diagnosis since I was 16 years old, it remained unrevealed to almost everyone (including some family members) I kept it to myself because I didn’t want to be seen as different, which was already something I felt & I didn’t want to…

via Living With An Untold Diagnosis — Lu’s Life In A Blog


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